A Cleveland Clinic & HIMSS Event. Find out more

Cleveland Clinic
May 13-15, 2019 | Cleveland, OH

Swapna Kakani

Patient Advocate and Founder
Swapna Speaks

Swapna Kakani was diagnosed with Short Bowel Syndrome, a chronic rare disease, at birth and for 27 years has lived with supplemental intravenous nutrition and a feeding tube. She has undergone several surgeries at multiple hospitals throughout the country. In 2012, she made the difficult decision to have her dysfunctional bowel removed and as a result, was not able to eat solid food for almost 3 years.  In spite of this, she loved to cook for her family and friends, calling herself a true “foodie,” and has become well versed in nutrition.   

In those three years, despite her constant hunger and craving to eat, Swapna went back to college, graduated with top honors, and gave the commencement address. In 2014, Swapna received a small intestine transplant and she is presently doing well eating beloved southern food for the first time!  She remains busy advocating for other rare disease patients and maintaining her quality of life as a young adult. 




Healthcare leaders at the forefront of the global patient experience movement will address which systems, tools and insights revolutionize the role of the patient and the caregiver. We’ll explore patient perspectives and clinical considerations to understand how empathy and innovation must be incorporated as integral pillars to deliver the best clinical, physical and emotional experience in healthcare.


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