A Cleveland Clinic & HIMSS Event. Find out more

Cleveland, OH
Cleveland Clinic
May 13-15, 2019

A Chronically Ill Patient's Journey

May 14, 2019
9:00am - 9:20am
Grand Ballroom

Swapna Kakani was diagnosed with Short Bowel Syndrome, a chronic rare disease, at birth, and for 27 years she has lived with supplemental intravenous nutrition and a feeding tube. In this session, Swapna will share her experiences in both the inpatient and outpatient settings of how shared decision making was not respected. Her goal is to help attendees understand the depth of the problem - how a gap in not understanding a patient's personal preference can lead to larger healthcare problems. Importantly, Swapna will explain what matters most to chronically ill patients. What do healthcare providers do right? What do they do wrong? Where wasn’t she included in the decision-making process that she wanted to be?



Patient Advocate and Founder
Swapna Speaks

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